“If you are going to have cancer, this is the one you want to have.”
If I could, I’d roll my eyeballs right out of my skull. Yes, of course I know the statement is true, because more likely than not this will not kill me, but it doesn’t mean it won’t suck a million times over. I wish, in general people would stop saying this because it’s not quite the neat little package that it’s made out to be. While initially, the diagnosis, surgery and treatment were acute – lots of big, scary things happening all at once and in a small period of time; now, it’s chronic. My salivary glands no longer work. Yes, you heard me correctly. I won’t die, but now I can’t spit. Bread is my mortal enemy.
The past few weeks have been a roller coaster trying to figure out what the hell is going on. When lumps appear in your neck after a cancer diagnosis the alarm sounds quickly and loudly. I cried hysterically to my ENT reliving the very rare, very fast death of Al Copeland who died of salivary gland cancer. “He lasted a minute! I can not go down like this!”
I am beyond grateful for supportive and non-judgemental doctors.
I don’t have salivary gland cancer but I likely do have radiation damage. So there’s been lots of blood work, several physical exams, an upcoming CT scan, and an upcoming appointment with my very first rheumatologist. (I actually know her, and she’s one of my favorite people so I’m pretty confident that if I fall apart in her office it will be totally cool.)
Having junk for salivary glands is totally cramping my style. Forget chips, crackers, dry cereal, granola, dried fruit, or anything that doesn’t require a liquid in order to consume it. Earlier this week I almost choked to death on the second bite of my turkey sandwich. All is not lost, however, because right after I dumped the deli meat dish of death, I replaced it with a large strawberry shake from Sonic.
Look, I am fully aware that I have very little, if nothing at all to complain about but I still find myself asking ‘why?’ What the hell is the universe trying to tell me? It’s confusing because it’s as though the universe came in and decided to fuck with me just enough to turn things on its head. Not enough to kill me, just enough to get me thinking.
Someone, anyone, please help me figure out, WHAT IS MY LESSON?
Is it my children? Yes, I agree that I sometimes make them wait and don’t treat them like they are the center of my universe. Well guess what, I am a complete human with a life, a career, a hot husband, interests, and friends. Sometimes they need to wait. I readily admit that there are times when I don’t look up to see exactly how they have twisted their fingers into a cool knot, drew an astronaut space lizard or can roll their tongue. (So can I. It’s really not that big if a deal, junior.) Sometimes Mommy has to respond to an email. Sometimes Mommy has to answer her girlfriends in a group text after a field trip to Farm Day about cow clothes and the lingering smell of death because That. Shit. Is. Funny. Making them wait, I believe, will also teach them the ever important life lesson that this big, beautiful world does not, in fact, revolve around them.
Is it vanity? Sorry, I’m not budging. I will not stop putting on actual clothes on a daily basis nor will I stop putting on make-up every day. I now face the world with the scarred neck of an 85 year-old chicken. So, I’m putting on the damn mascara. Besides, I am the female prototype for both of my children which, to me, is a pretty important responsibility. Taking care of myself, and actually caring for myself is a pretty powerful message to send to them. Not to mention, when out in public, a little lip gloss goes a long way when pushing a shopping cart full of giggles and fart noises.
Is it balance? I have made the very conscious decision to make 2017 my bitch. I think I’ve done a terrific job so far. I’ve exceeded my initial goal of one publication on a ‘big site.’ Right at this very moment, I’ve lost exact count, but I’m ever humbled and grateful for each and every one of them. If something doesn’t bring me joy, I don’t do it. I say ‘no’ when I need to. I cry when I need to and ask for help when we need that, too. I feel more at peace and more balanced today then I have in years.
So what the ever-loving hell?
In the meantime, while I’m trying to figure it all out, I’ll continue to focus on gratitude. In the midst of uncertainty, it’s really the only thing that grounds me. No matter what, I really do have so much to be thankful for. Sure, not being able to eat sucks, but at least the bread didn’t kill me. I refuse to let whole grains take me down. Death by food would only be acceptable if it was something good enough to drool over, and well, since I can’t do that anyway…